Pain Pain Go Away

12 days and counting – nasty pain, 5 lesions are swollen, infected and sapping my energy. Doctors are a complete waste of time – I can’t get there to get a prescription and they won’t call me back or come to see me. I am told to put request for antibiotics in writing, hand deliver as an emergency prescription and then it will take 2 days. I just cannot believe how mental the system is.

I have asked if I can e-mail it and they say no. What do you do when you live on your own and you have few pals and no one to ask to do it for you. Its a total shambles.I am pissed off and angry at this damned illness that gives me no respite. Bought a book on pain control, great book but essentially my condition is chronic with frequent acute flare ups. There is not one day that passes where my body is pain free.
My joints are now all swollen – asked the doctors and they said uhh no its not linked to Hidradenitis Supperativa – then I spent nearly a months worth on benefits and bought the only medical book on the subject and there in black and white it says yes there is possibly a link – reactive arthritis more than likely. So great i have a incurable skin disease that most medical professionals know nothing about, i now have arthritis and my weight is piling on and i cannot really think of way of not feeling so damned down.

The other day I decided to go for a walk despite the pain and went to my local park. It was a beautiful day, sunny but cold and fresh. I walked just over a mile – it took about half an hour. This is the best speed and distance in about 4 months. 2 years ago around this time i was walking over 3 miles in about an hour. That just shows just how much things have got worse. 2 weeks ago it took me about a hour to walk about half a mile.

That said walking has its own price to pay – 2 days ago i walked for 30 mins and now i have been in agony for 2 days, temperature, infection, swelling and pain. This all results in tramdol and pain killer mixture of drugs, insomnia and this sodding drugged feeling. No exercise and a mouth that is so dry regardless of what I drink. My solution – to eat loads of carbs, feel like shit and get as horizontal as i can. Can’t even wear clothing as it is too painful.

They told me to keep a diary, so far I can only maintain it every few weeks or so – so now i am thinking lets just keep this online blog as my daily diary – lets face it is a bit easier to do and maybe someone might chance upon it and offer a helping hand. Who knows??